Sunday, August 15, 2010

3 year Check up

My three year check up was last week and things went great. It has now been three years since I had the nodule removed from my lung and my scans continue to be clean. With each check up my odds improve and I'm now out of the high risk time period when things usually show up. Although, I'm not totally out of the woods statistically speaking, the odds are finally in my favor.

So many things have happened in that time, with my family, business and our county. You never can predict the future. I feel fortunate to have dodged enough bullets to see all the changes for myself, good and bad. That's life.

Thanks to everyone for your help, support, and understanding. Thanks to Ashley and my family for being there. It's been tough. It's been scary. It's been difficult.

I'm lucky to have you all.

CP

Congratulations to my brother for not speaking for over three months, and in doing so raising over $18,000 for the Leukemia Lymphoma Society in honor of our mother.

Sunday, May 23, 2010

National Cancer Survivors Day is June 6th

Article in Durham Paper

I feel silly being interviewed for stuff like this. There are people that have been through much worse and overcome greater obstacles. Regardless, we should all be mindful of June 6th and those individuals and families that have endured so much and can celebrate survival.

Sunday, May 09, 2010

SilentClark

I wanted to make a quick plug on the Chronicles for my brother, Clark, and his fundraising efforts for cancer. He's taking a month and only communicating through social media (facebook, twitter, blog, etc). As he explores the possibilities of using this platform to communicate (which means not speaking), he is trying to gain support and raise money for the Leukemia & Lymphoma Society, in memory of our mother, who battled Leukemia for over ten years and passed away last Valentines Day.

Please check him out on his website www.socialmediaexperiment.com and show your support by either donating or sharing the site and story with your friends and family.

Thanks and take care.

CP

5/19 Update: I had my chest scan today which came back clean. The next one is scheduled for August 13th and marks 3 years since my last treatment. At that point, I will be out of the high risk for recurrence. Man, that would be great.

Monday, March 22, 2010

Midtown Article

I recently wrote an article for an insert about cancer in Midtown Magazine this month. They wanted to have the view points of some local individuals who had experienced cancer first hand. Here is my edited version of the article which was condensed slightly for their magazine. The picture is the one they used as well. Of the two people they asked to write articles, one of us didn't make it to see theirs published. August 12 is my three year check up. Hope all is well out there with everyone!




In May of 2006, I was diagnosed with a rare form of Sarcoma called a Triton Tumor. Since then, I’ve had dozens of surgeries, experienced radiation therapy, and gone through a tough regime of chemotherapy. I wanted to be aggressive. I wanted to do what I thought would give me the best chance of survival. My cancer was also aggressive. Within 18 months of my diagnosis, it recurred at the original site in my arm and metastasized to my lung. I feel like my attitude and actions, the support I had, my faith, and the treatments I received not only saved my life, but also kept my outlook positive during a tough journey.
For those who might find themselves in a similar situation, the following points could both help your chances and make the experience as tolerable as possible:

Act fast. The faster you see doctors and start treatments, the better chance you have. Don’t let fear delay the process.

Get a second opinion. Don’t “shop around” for a favorable diagnosis/prognosis; instead a second opinion will help you understand your options more completely and can either confirm what you’ve heard or bring new insight to the table.

Start a blog, journal or email chain. I posted regularly on my blog (www.cph3.blogspot.com) to inform friends and family and vent my fears and frustrations.

Don’t let statistics scare you. Statistics are based on the past, not the future. They also refer to groups, not individuals. You are not a statistic. I’ve had some frightening ones thrown at me, but have proved most of them wrong.

Cancer is just a cluster of abnormal cells, that's it. These cells can be (and are normally) removed by the body itself or if need be by modern medicine.

Think outside the box. Check out nutritionists, acupuncturists, herbalists, etc. Acupuncture helped me stay well mentally and physically and eased the nausea and pain of chemo.

Try to live your life as normal as possible. Push yourself to do the things you enjoy. Don’t let the diagnosis and treatments consume you.

Plan a trip. My wife and I planned a trip a month after I finished chemo. Although I was completely hairless and a neon shade of green, it was something to look forward to.

Have support. Surround yourself with friends, family and faith, if possible. If not, look into support groups, counselors or online networks. Don’t do this alone.

I have lost a lot to cancer. I’ve lost the use of my hand, I’ve lost time, and most recently, I lost my mother to leukemia last year. Significant chronic pain and memories of horrors seen and experienced during treatment will probably haunt me for life. I am the type of person who tries to find silver linings and solutions to problems and am always thankful for what I have. I am a realist who knows I could be dead or still fighting what could seem like an endless or even hopeless battle. As of now, I’ve come out on the other side. It was a war and I have scars, but I survived it. Cancer is an obstacle that can be overcome. Survivors and others that have weathered the storm have a fortitude that can only come from this type of personal struggle. Being a survivor is an accomplishment of which to be both proud and thankful. I am both.

Thanks to my wife, Ashley, my mother, family, friends, doctors, nurses, and everyone who has helped me in so many different ways through my journey, and best of luck to those who have found themselves on one of their own.

Thursday, September 17, 2009

I'm Not Chopping My Hand Off...

...well at least not this year. I've put alot of thought into this one, more than my usual fly by the seat of my pants decision making process (poker table aside, Simons). I think it was great for me to go to Atlanta and meet amputees as well as see where technology is going. There are several major factors that shaped this decision, which I might add is not perpetually set in stone.

1. I truly think it is easier to change a diaper and toss a baby in the air with two hands. (the hook could get a little dodgey when catching a reorbitting baby)

2. some of the biggest technological advances in the history of commercially available prosthetics will occur in the next 5-10 years.

3. after experienced a failed surgery (or two or three), I'm not quite as eager to jump under the knife.

4. watching a friend lose his entire arm to sarcoma recently made me cherish what I've got that much more

So for now, breathe easy. No awkard moments attempting to make small talk while trying not to stare but at the same time investigate my new arm. I know it will happen, just not this decade. Take care.

CP



Tuesday, August 25, 2009

25 months in the clear...

I had a clean chest scan the other week as well as an mri showing no change in my arm. This makes over two years since I had the nodule appear in my lung and around two and a half since the tumor reoccurred in my arm. It feels great to keep increasing the time since having any treatments.

Today I visited a friend I've made this year through the Duke sarcoma program. He was at the hospital recovering from his third surgery in six years that now involved removing his entire arm at the shoulder joint (after previous surgeries that removed his hand then arm above he elbow). As I visited him on the fifth floor where we had both endured chemo, I saw some familiar faces of nurses who had kept up with me and knew about the twins. These people really do care. One nurse showed me the picture of my bald self that still hangs on the "We Love Our Kids" board on the hall. Dave and his wife both have a similar courage and humor that I feel I've tried to show. If my attitude mirrored his at all, I'm very content with the way I've handled myself through that time.

Although i haven't made a decision about the amputation, at least I have a choice. Currently, I'm waiting to hear back from an amputee who works with Duke who's trying to create a trainer prosthetic that would allow me to sample the experience.

PS I finally broke down and joined the world of Facebook. and Blonde Baller needs to seriously step up her game (don't you think, GC?).

Thursday, July 16, 2009

Hand Update

I'm still in the middle of a monster bought of indecisiveness/procrastination regarding this amputation idea. On one hand, it would give me significantly more function and less pain (hopefully). On the other hand, I have to cut off the other hand.... After talking with a number of inspiring people, going to the annual Amputee Coalition conference in Atlanta, surviving the reunion with the Wake/ATL crew there, and putting a ton of thought into this decision, I feel like the eventual call will be to amputate. It's been comforting to gain perspective and insight on the topic over the past couple of months. They make some amazing Mr. Gadget stuff out there. The electric hands in the pipeline are pretty incredible as well.

I would most likely wear a body powered devise (like he standard split hook) for the first few years and then move to one of the electric hands that I like which isn't currently available. From what I've gathered the Roy Munson model hook is still one of the most popular ones out there for function, although there have been a few upgrades. While in Atlanta, I was able to see the prosthetic in a different role than I had originally envisioned it. The folks there saw and used the devise as a tool. It isn't your hand. The hand is gone. This is a tool that allows you to complete tasks. The prosthetic doesn't have to always be worn, just worn when it is needed. There are also many attachments for different jobs, general labor, shooting, dancing with your crew, etc. As I explained to my Big C's, the TRS catalog contained countless activities that I currently can't do but could with the use of a specialized prosthetic.

It's hard to explain where I am with it all. Probably the hardest part is ending up here due to a flubbed elective surgery. While attempting to increase my hand function last year, the surgery resulted in my losing almost all the use of the two fingers that did work. I actually debated even having that surgery because I was getting along so well, but decided to roll the dice. Unfortunately, the radiation treatments and other surgeries created unforeseen complications for what my surgeon (who is the man) considered a routine surgery. I told him in pre-surgery that my only concern was losing what I had gained after so much work. To which he genuinely replied, "You won't." Shit on that!

So what now? The plan is to talk to some prosthetists in the area and find one that I'm confortable using. Once I'm happy, we'll decide what he would ideally like to work with after surgery, keeping in mind the future of the industry. The goal would be to have a stump (the un-PC term) that would work best with a prosthetic, whether it be a body powered or myoelectric device. Most likely, the amputation would occur halfway between the wrist and the elbow. I was told the surgery would only take a couple weeks of recovery, then the prosthetist would fit me with socket that the terminal device would be attached to. That's about it.

4th of July marked two years without any cancer. One more year and I'm out of the (statistical) high risk period for recurrence which we will most likely celebrate with Ashley moving into a high risk for becoming pregnant again. This past Saturday I participated in Duke's first annual kick off run/walk (do you need to ask?) for international sarcoma awareness week. If you're reading this, be prepared next year to participate with your presence and your wallet. It was a last minute event, but had a good turn out. Most of my oncologists were there with their nurses on an informal level, celebrating the combined success with their patients. This week Ashley and I are taking the girls to one of the events Wednesday. It truly is special for everyone. Thanks to the folks at Duke, the support from everyone, and His will, we have a happy, healthy family of four. Well, as long as no one is tired or hungry...

As long as I can continue to write about anything other than having to battle cancer, I think we're OK.

Take care.